SMA家庭和病人都想知道更多新藥資料及相關保健知識，FSMA特於9月2日假香港國際城景酒店舉辦「望新藥 (SPINRAZA) 盼望與期望」 分享會，由經已接受新藥SPINRAZA療程注射的病人家長，分享試藥經驗，希望有助會員及家長對新藥的了解，共有80多會員及家長出席。我們非常榮幸和感激港島西醫院聯網總監陸志聰醫生特意出席是次活動。
Understanding that SMA families were eager to learn more about information related to new drugs and health care, FSMA organized a New Durg “SPINRAZA” Sharing Session at the Cityview Hotel on 2nd September. Parents of SMA patients who have been receiving treatment with the new drug SPINRAZA were invited to share their experience during the treatment. More than 80 members and their families attended the event. We were greatly honored and thankful to have Dr. C.C. Luk, Cluster Chief Executive of Hong Kong West Cluster, joining our event.
司儀：「望新藥 (SPINRAZA) 盼望與期望」 分享會開始了！
Our MC: Let the New Durg “SPINRAZA” Sharing Session begins!
Dr. Mei Ling Fok, Founder & Chairman of FSMA, delivers the welcoming remarks.
Parents of FSMA members, who have been receiving the new drug treatment, share their experience on preparation work, treatment process and progress on treatment.
Ms. Maria Wong, Executive Committee Member of FSMA, introduces the Medical Concern Group, which is a mutual aid group among FSMA members and families which works together with FSMA to keep track on the progress of new drug treatment.
Thank you Mr. Ken Ip, registered physiotherapist, for sharing health care information on chest and pulmonary, as well as gross motor skills training.
A parent of FSMA member who attended the 2018 SMA Conference in the U.S. shares the latest information on new drug research acquired during the conference.
Thank you Dr. C.C. Luk, Cluster Chief Executive of Hong Kong West Cluster, for giving us a sharing.
Ms. Tina Wong, Chief Operating Officer of FSMA, announces she would step down from her post in October. Dr. Mei Ling Fok, Founder & Chairman of FSMA, expresses her appreciation with flowers for Tina’s strenuous work and contribution to FSMA.
Meanwhile, Dr. Mei Ling Fok introduces Mr. William Cheung, who will be on board in October as our Chief Executive Officer.