Our Mission Statement

"To help in the relief of hardship and suffering of patients afflicted with Spinal Muscular Atrophy (SMA) and their family members."

Our Services

1.  Home Based Rehabilitation Programme

2. High Nutrition Supplement

3. Wheelchair Transportation Service

4. Free Outdoor Activities

5. Wheelchair Donation

6. Loan & Donation of Medical Equipment

What is Spinal Muscular Atrophy?

Spinal Muscular Atrophy (SMA) is a disease of the anterior horn cells. Anterior horn cells are located in the spinal cord. SMA affects the voluntary muscles for activities such as crawling, walking, head and neck control and swallowing. It mainly affects the proximal muscles, or in other words the muscles closest to the point of origin, in this case those closest to the trunk of one's body. (Learn more…)

Latest News

09/29/2020

Sales of Raffle Ticket 2020

Families of SMA Charitable Trust is conducting our Raffle Ticket Sales as from 27 October 2020 to 18 December 2020 (Note: The ticket will be sold on 27 October 2020). Each ticket costs HK$30. All proceeds will be used towards our mission to help in the relief of hardship and suffering of children afflicted with SMA and their families. Please support our Raffle campaign and share your love with them. If interested, please contact 2811 1767 or email info@fsma.org.hk. 

08/23/2020

SMA Treatment : Latest Update Webinar

We are very pleased to announce that the webinar “SMA Treatment: Latest Update”, jointly organized by Families of SMA (Spinal Muscular Atrophy) Charitable Trust and Hong Kong Neuro-Muscular Disease Association Limited, was successfully conducted on 22 August 2020. For this webinar, our special thanks go to the two invited expert speakers, Dr. Sophelia Chan Hoi Shan and Dr. Michael Fu Yat Pang (Please refer to poster below). Of course, we are very grateful to all participants joining that day, and we hope everyone can benefit from this webinar.

05/25/2020

What would you do when faced with a challenge – give up or overcome it?

What would you do when faced with a challenge – give up or overcome it? The mother of a Type 1 SMA patient, Liu Tze Fei, chose not to give up on her daughter, although she understood that the path for Tze Fei would not be easy and might even be hopeless. She insisted on raising Tze Fei by herself. Patients with Type 1 SMA normally cannot live more than two years. Under the care of her mum and with support from FSMA, Tze Fei is now five years old. Tze Fei’s mum reads her stories, plays musical instruments, does exercise with Tze Fei, and takes her out for a “walk” every day. She believes that as long as she doesn’t give up, there may be a miracle in the future.

 

With the support of Biogen, FSMA turned the stories of various SMA patients and their family members into video clips. FSMA hopes that people in Hong Kong can stay positive and not give up, no matter how difficult the future might be.

05/25/2020

“With love, nothing is too difficult.”

“With love, nothing is too difficult.” With this belief, Wenus turned the worry and sadness she felt about her son Marcus’ diagnosis of Type 1 SMA into motivation for taking care of her son. To provide more exercise opportunities for Marcus, she used her fertile imagination to create many innovative exercise tools. She used water pipes and fabric to build a frame so Marcus can move his arms when he is sitting. She hopes one day her persistence will make her dream come true, and Marcus will walk to her and give her a hug and a kiss.  

 

With support from Biogen, FSMA turned the stories of various SMA patients and their family members into video clips to encourage people in Hong Kong to stay positive during difficult times.

05/14/2020

Invitation to Sponsor FSMA’s Website Revamp

FSMA’s website has been created since the charity’s establishment. With technological advancement, we see a need to revamp FSMA’s website, so that FSMA can effectively raise awareness and education towards SMA.

We call for your generous donation to sponsor FSMA’s website upgrade, so that more people can understand the disease and FSMA can reach those who are affected by SMA.
If you are interested in donating and supporting this cause, please don’t hesitate to contact us by phone 2811 1767 or email info@fsma.org.hk.

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​​Tel/電話 :  2811 1767

Fax/傳真 :  2510 7199
Email/電郵 :info@fsma.org.hk

Address​/地址: 

Room 1402, 14/F, SUP Tower, 83 King's Road, North Point, Hong Kong

​香港北角英皇道83號聯合出版大廈14樓1402室

© 2017 by Families of SMA (Spinal Muscular Atrophy) Charitable Trust.